My Son With Autism and Cognitive Challenges Benefits GREATLY from Volunteer Work

This FB memory is one of my favorites - Conor washing windows at the Willie O'Ree Place. Conor benefits GREATLY from being able to perform volunteer work that he does there. He benefits physically and emotionally his post 21 aging out of school anxiety levels were nipped in the bud with his Window washing work. The past 2 years I have seen the EVIDENCE of the value he receives. (Unlike non evidence based NBACL and Autism Connections Fredericton who are trying to take such opportunities away from my son and others in similar cases) Conor misses his window washing work when he can't for various reasons get to do it on specific days.

2 Years Ago

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Harold L Doherty is at Willie O'Ree Place.

March 13, 2018 · Fredericton, NB · 

which he does there and he got down to scrub the bottom window in this picture when I arrived. Yes he likes this work as you might be able to tell from his smile.

Would you recommend this place?

The Joy of Conor

The Joy of Conor. My son is loved by his family and all who meet and know him. Some people ask why I am involved in autism advocacy. The answer is simple and complex. I got involved and stay involved because of the autism diagnosis he received the day after his second birthday (shown in the attached birthday picture. I got involved to ensure him the best life possible and he has repaid that effort and the efforts of his mother and brother Brandon in full. He has been well loved.

I am also involved though to fight for evidence based quality services for other persons with autism who need help. With other parents I advocated for evidence based early autism treatment which we KNEW OUR CHILDREN would not receive by the time such an accomplishment came to pass. It was the right thing to do and I believe Conor would have wanted it done for others. He is loved when he visits every store in Fredericton and he has to date enjoyed his life to the max. The Joy of Conor.

Prime Minister Trudeau and Premier Gallant: Autism Is a Complex Health Issue For Consideration in Your Negotiations

NB Premier Brian Gallant Campaigning with Prime Minister Justin Trudeau During the 2014 NB Election;  Photo by Harold L Doherty

 Dear Prime Minister Trudeau and NB Premier Gallant:

Autism Is a Complex Health Issue For  Consideration in Your Negotiations

Media reports indicate that the Province of NB and the Government of Canada are "going it alone" on negotiation of health care funding. I have been advocating in NB, along with other parents and concerned academics and professionals,  for evidence based autism treatment and services for persons with autism disorders and I urge you to specifically consider negotiating both funding of medicare for evidence based autism services and an adult group home network with a center in Fredericton for permanent care of those with severe autism disorders so that they can live near their families in facilities with autism and related disorders expertise. 

 Here in NB the government has responded well, to parent advocacy,  at the early intervention level with its internationally recognized early program established by former Premiers Lord and Graham. Premiers Lord and Graham also initiated the training of education aides and resource teachers. Consultation for evidence based applied behaviour analysis has also been provided up to age 16. Given that autism disorders are complex life long neurological disorders often accompanied by intellectual disability and epilepsy it is very unfortunate that in NB the Department of Health has not worked with Child and Family/Social Development to establish a group home  network around the province, close to families and specific to autism with a center in Fredericton to provide training, oversight to the group homes and for those severely affected by autism and related disorders, including my son, a permanent residence.  

Provision of medicare funding of ABA coverage for autism should be a component of the autism group home network and center and should be considered in your negotiations.  The Liberal Party of Canada passed a resolution supporting full funding for medicare coverage of applied behaviour analysis (ABA) for autism spectrum disorders by amendment of the Canada Health Act at its Winnipeg Convention 2016. It is my understanding that support for the resolution was very strong including prominent Liberal Bob Rae who I know first hand from discussions in the kitchen of the late Andy Scott and in a Toronto meeting with Medicare for Autism Representatives, has long had a strong interest in autism issues.

Image from Bob Rae, MP! 

@BobRaeMP on Twitter

Please negotiate full funding for applied behaviour analysis for autism in NB for autistic persons throughout the lifespan.  The availability of ABA training at the adult level would be a major component of a serious, humane attempt to address the life time challenges facing adults with complex autism disorders.

Respectfully,

Harold L Doherty

Conor's Dad

Queen Elizabeth II  Diamond  Jubilee Medal Recipient (Autism Advocacy)

Member of the Board of Directors of Medicare for Autism NOW!

New Brunswick Preschool Autism Intervention Program Receives Boost - Adults with Autism? Still Invisible

Left: My son Conor As I See Him

Right: My son Conor as the PNB Sees Him

I am happy to see the news release posted below outlining the boosts to NB's early intervention program.  The original early intervention program was provided by UNB-CEL when the Lord and Graham governments responded to persistent parent autism advocacy.  As advocates we knew early intervention was the important place to start even though our autistic children would be too old for the early program by the time it could be established. We were also able to get some progress in the school system.  Adult autism care and treatment, particularly adults with severe autism related challenges,  has been largely ignored by the PNB which has preferred to send severely autistic adults to our northern border to the psychiatric hospital in MLA Donald Arseneault's riding.  Their distance from families and lack of autism expertise are of no import as autistic adults like my son above remain largely invisible to our NB government. 

I am posting below the Education and Early Childhood Development Preschool autism intervention program notice in full.  Hopefully someday the PNB will start providing humane care and treatment to autistic adults particularly those with severe challenges.

.....

News Releasey 

Education and Early Childhood Development
Preschool autism intervention program improved and funding increased
20 December 2016

FREDERICTON (GNB) – The Department of Education and Early Childhood Development is introducing an enhanced model for the Preschool Autism Intervention Program and increasing funding.

“In New Brunswick, we are fortunate to have an intervention program that has been recognized nationally and that makes a real difference in the lives of children with autism spectrum disorder,” said Education and Early Childhood Development Minister Brian Kenny. “There are no waiting lists and every child with autism begins receiving services as soon as they are diagnosed. We know that we can make this program even better through these improvements which will increase funding and standardize services across the province while incorporating new evidence-based practices.”

Improvements include:

Providing additional funding per child for services each year, increasing the average funding from $27,500 to almost $33,000 per child.
Providing training for parents to increase their involvement.
Aligning the new model with the school districts to ensure that children are served equally throughout the province and have an easier transition to school. This means that children will receive services by the agency in their school district.
Increasing wages and travel reimbursement for intervention staff, aimed at reducing turnover and improving services.

Increasing the quality of service to children through a pod staffing model that serves 25 children with set ratios of professional to paraprofessional staff to ensure sufficient clinical supervision.

Using the Comprehensive Assessment for Learning and Independence and the Comprehensive Curriculum for Learning and Independence as assessment and intervention tools. These were developed by the Department of Education and Early Childhood Development and the Lovaas Institute in Minnesota and are currently being used for children in New Brunswick schools.

Providing training to all agency staff in new intervention strategies and tools to increase the rate of learning for children and help reduce staff turnover.
The province has also developed preschool autism online training which is available to personnel working with children with autism. This training will align with the online training for school professionals and is available across the Atlantic Provinces. It is provided through an interprovincial partnership as part of the Council of Atlantic Ministers of Education and Training. The development of the online training is a key element in the positive transition to school for children with autism.

“As part of our efforts to improve this service, we asked families currently using the program, experts, and service providers for their input to better understand the needs of parents and their satisfaction level with the program,” said Kenny. “These improvements are a direct result of the information gathered during those sessions.”

In conjunction with these improvements and to increase transparency and accountability, a request for proposals was issued for the delivery of the enhanced model for the Preschool Autism Intervention Program. The successful proponent, Danielle Pelletier Speech-language Pathologist Corp. DBA Autism Intervention Services, will begin offering services in February. In the meantime, children will continue to receive services from their current agency.

“I am very pleased to have this opportunity to provide preschool autism intervention services to children around the province,” said Danielle Pelletier. “I am looking forward to reaching out to staff in the existing centres to ensure a smooth transition, and look forward to sharing my passion and expertise with families participating in the program.”

Autism spectrum disorder is recognized as one of the most common developmental disorders affecting children in Canada and around the world. The Preschool Autism Program provides 20 hours of intensive behaviour intervention to preschool children with a diagnosis of autism. In 2015-16, this program served 816 children. The goal is to provide early intensive behavior intervention that reduces the features of autism for children. Intervention is most effective in reducing the need for future support when it is carried out intensively during a child’s preschool years.

In the 2016-17 provincial budget, funding to the pre-school autism program was increased by $1.3 million, for a total program budget of $17.2 million.

More information on autism services is available on the Department of Education and Early Childhood Development website.