Tuesday, September 19, 2017

Some Adult Severe Autism Reality for NB Politicians


Autism mother and advocate Cynthia Bartlett - R
Ernie Steeves, PC Party MLA - L


Cynthia Bartlett, autism mother and advocate, and Ernies Steeves, a PC MLA who has shown a sincere interest in autism including adult autism residential care issues' are shown above at the NB Legislature the day of an autism protest.  

Yesterday Cynthia Bartlett, who knows what she is talking about, who has lived the challenges of providing care for an adult autistic loved one, posted a message on Facebook which was compelling and on point.  It is a message that government officials attempting to address autism issues in NB should read and not, as they often do, dismiss as irrelevant because it does not suit various political agendas:

Cynthia Bartlett
Saint Stephen, NB ·
Nothing has happened at all for the whole of my time in Canada since 2000 for long term, appropriate, therapeutic, professionally supported long term care for severely affected autistic adults who can also have comorbid conditions such as epilepsy. 
Care becomes very difficult for aging parents and there is evidence that the parents health due to the intense care is affected, full employment becomes very difficult and finances become stressful. These parents are devoted, but exhausted and very worried about the family's future, mostly their adult child's should the parents become too weak or in fact pass away themselves. 
So millions gets spent without a thought on restoration of historical buildings, "infrastructure " and additions to city hospitals at the expense of full services at rural hospitals (also needed for those with emergency needs such as epilepsy and self harm). But the vulnerable amongst us are compromised despite several attempts by advocating parents and MLAs. This is not constitutional, flat out, and not acceptable from any government.



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